September MPDC Webinar: Advancing Pediatrics with Real-World Data

September 17th, 12:00pm – 1:00pm ET.

The session focused on how RWD can be used to enhance patient outcomes, inform clinical decision-making, and accelerate research, while also addressing the critical data privacy, security, and ethical considerations specific to children.

 

 

Here’s a summary of the key takeaways:

  • Unique Value of RWD in Pediatrics: Real-world data (RWD) offers crucial insights in pediatric care, overcoming challenges in traditional trials due to small populations and ethical limits.

 

  • Remote Monitoring Benefits: Continuous RWD from remote monitoring provides a fuller picture of children’s health, tracking disease progression and treatment responses over time.

 

  • Enhancing Outcomes & Decisions: RWD helps predict outcomes, personalize care, enable early interventions, and support shared decision-making among families and clinicians.

 

  • Boosting Pediatric Research: RWD accelerates research by supporting studies on rare conditions, increasing data diversity, and reducing trial costs and timelines.

 

  • Ethical Use & Data Protection: Emphasis was placed on safeguarding pediatric data through privacy laws, de-identification, consent processes, and ethical guidelines.

Key Highlights:

  • The transformative potential of RWD to improve pediatric healthcare delivery and research.

 

  • The unique advantages of RWD are collected through remote patient monitoring.

 

  • Practical applications of RWD in enhancing clinical decision-making and personalizing care.

 

  • The paramount importance of addressing data privacy, security, and ethical considerations when using RWD in children.

We look forward to your participation!